Friday, January 26, 2007

This Face



is the face of Tourette's. My gorgeous daughter has now been diagnosed officially with having this syndrome. I spent the first couple of days in a sort of numb shell shocked way even though I knew this would probably be the diagnosis. No one wants to hear anything like that regarding their child. However as a couple of days have passed by and I have done some major researching acceptance has come and also the realization that this is not so bad. I mean its not life or death. Its pretty mild she mostly just has facial "ticks" , eye blinking, grimacing head nodding, shoulder jerking and a little bit of squeaking with her throat. It mostly comes out late afternoon and at night when she is more tired.

I researched the "drugs"prescribed and Waun and I made a very easy decision not to medicate her. She is well liked by her peers, has lots of friends, the teachers in her class say she is not disruptive, her principle is very against medicating as our we. So instead we are going to continue on with a holistic approach to this and see how that works for now. As long as Paige is happy and well adjusted then there is no point in changing who she is with a medicated version of Paige just to control some "ticks".

13 Comments:

Blogger Anne Magee said...

Mellie, I am so sorry you and your family are going through this... I applaud your decision!!! It would be a tough choice, either way... (((hugs)))

4:56 PM  
Blogger Heather said...

Good luck with it all Mellie- follow your instinct as a mom, and everything will be fine. She's beautiful!

5:13 PM  
Blogger Tracey Taylor said...

That is a beautiful face!!!! Sounds like you guys have taken a great approach to the whole situation. {{hugs}}} I can't imagine the turmoil you've been through these last few weeks.

7:01 PM  
Blogger Rebecca said...

She is so beautiful! You know that we are always here for you. Hugs!

4:55 PM  
Blogger Sue Jones said...

Its a beautiful face :) Good decision. You know where i am if you need me darling xx

1:31 PM  
Blogger Sandie said...

The poor baby. I hate when things like this happen. Our children have enough hurdles without adding to them. As I told you before, My own Mom lived with this condition.. and she did fine. I know it's a shock to the system... but then.. we get thru it, and we get stronger. If you ever need to talk.. you know where I am.
Hugs

3:18 PM  
Anonymous Anonymous said...

((((Hugs)))) to you and Paige Mellie.:D She is beautiful and she looks very happy. There's definitely more awareness of this condition in the UK now - more understanding. Wishing you all the strength to cope with it. xxx

4:01 PM  
Blogger altermyworld said...

Mel,
My friend, Let not this be your defining moment, feel the love of us all. Wrap your arms around Paige and around Waun and let this sink in. YOU will be ok, Paige will be ok.
Sending you lots of support.
Ang

1:16 PM  
Blogger photoholly said...

hey mellie,
i think knowing what's wrong is better than just guessing and being tied up in knots over it. Paige is still a wonderful human being, you and wuan will learn and grow as parents. Yeah for not putting her on drugs!!!! You know I'm there for you if you need it. We also HAVE to get together for an art day!!!
hugs to all of you,
Groovy Holly

9:16 PM  
Blogger Mackey said...

This face is a gorgeous face - I wouldn't change a thing if I could! I support your decision 100%, although I would have supported you either way because I believe you as a mother. You guys are going to do GREAT, Paige is going to do great and BE great! It's all going to turn out fine!

Now - are you staying UN-FROZEN today!?!?!? Brrrrr Brrrrr Brrrrr Mellie!!!

6:36 PM  
Blogger jo said...

Found you again!!!!!

Paige is lucky to have such supportive parents and I'm sure that everything is going to be fine. (((hugs))) to you all. xx

4:38 AM  
Blogger Anam_Kihaku said...

that is such a cool decision. she is a beautiful girl and smart. that is what matters.

9:46 PM  
Blogger GlitteryKatie said...

and a gorgeous face it is too!
So sorry that Paige has this syndrome to bear but stick with your instincts!
I cannot believe how much she has grown-WOW!
Loads of love to you all
kt x

11:38 AM  

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